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Inclusive Participation Toolbox
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  • Why participation

    Basic principles around disability and participation and their connection to international frameworks

    Overview: Why participation
    • A closer look at disability & participation
    • Requirements of international frameworks
  • In practice

    A set of guidance on how to implement participation in everyday life and work

    Overview: Participation in practice
    • Key enablers of participation
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    Information on Organisations of Persons with Disabilities (OPDs) and how to find and work with them

    Overview: Get connected
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    Download section for a variety of material to guide your advocacy work and project planning around participation

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  4. International Federation for Spina Bifida and Hydrocephalus (IF)

International Federation for Spina Bifida and Hydrocephalus (IF)

The International Federation for Spina Bifida and Hydrocephalus (IF) was founded by people with spina bifida and hydrocephalus (SBH) and their families in 1979. Over the years, it has grown from a voluntary association into a professional disabled people’s organisation (DPO) with global coverage, democratic structure and transparent and accountable processes.

The International Federation for Spina Bifida and Hydrocephalus (IF) was founded by people with Spina Bifida and Hydrocephalus (SBH) and their families in 1979. Over the years, it has grown from a voluntary association into a professional disabled people’s organisation (DPO) with global coverage, democratic structure and transparent and accountable processes.

The majority of IF member organisations are led and governed by adults with SBH or parents of children with SBH. Children are active participants in our members’ activities: they are involved in child-led activities, training workshops on independence and holiday camps. Nowadays, many young people with SBH have taken over the leadership of their organisations. In most cases, IF members choose close cooperation with medical and education professionals and researchers, given the importance of these professions to children and adults with SBH for their survival and development.

Ways to get in touch

info@ifglobal.org External link Website of IF
Find International Federation for Spina Bifida and Hydrocephalus (IF) on Twitter Find International Federation for Spina Bifida and Hydrocephalus (IF) on Facebook
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